A 27-year-old man shared his experience of undergoing treatment for an extremely rare illness that left him “literally radioactive.” Ben Wagenmann, a German student residing in Switzerland, discovered a lump on his throat after a skiing trip in April 2023, following a chest infection.

Despite initial improvement in his symptoms after a week, the lump persisted, prompting Ben to undergo a 3D ultrasound in November, which identified a 6cm tumor behind a lymph node. Subsequently, a diagnosis of cervical paraganglioma, a rare cancer in the carotid artery, was made when Ben was 25 years old.

Ben’s treatment involved radionuclide therapy, a form of radioactive treatment that targets and eliminates cancer cells internally. While the therapy prevented further spreading of the cancer, it did not reduce the existing tumors. Ben now focuses on prolonging his life rather than seeking a cure, acknowledging the likelihood of a shorter lifespan.

Reflecting on his situation, Ben mentioned the emotional impact on his parents and his acceptance of the uncertain future. Despite the challenges, he remains active, participating in activities like cycling and skiing between his studies. Ben’s story serves as a testament to resilience and determination in the face of adversity.

Ben’s journey highlights the complexities of rare cancer management and the ongoing uncertainty surrounding his prognosis. Despite experiencing consistent pain and undergoing various treatments, Ben remains committed to living life to the fullest, aiming to inspire others facing similar challenges.

Ben’s narrative is part of the World Cancer Research Fund’s Every Step Tells a Story initiative, showcasing individuals affected by cancer and their resilience. To learn more about the campaign, visit www.wcrf.org/support-us/every-step.